CANCER

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GANGLIONUEROBLASTOMA - the scary name that we were not expecting to hear. It is Cancer and only 5 out of every million children have this type of tumor. The doctor called with an initial plan today.

 The first step is to find out what stage it is in. An metaiodobenzlguanidine ( MIGB) scan will be done to help locate and diagnose tumors in the body. It will tell us if there are any more tumors. Since this particular type of tumor also attacks bone marrow she will need a bone marrow biopsy. The doctor let her know that it will be painful and we are trying to prepare her for it. She will have to take medication for her thyroid prior to the MIGB scan to protect her thyroid from the radioactive dye that is injected into her system. Pictures will be taken and any bright spots that show up are identified by the doctor. About 10% of these scans do not work and she will need a separate bone scan if that is the case. She will also need another CT scan of her entire chest and measurements will be taken of the tumor.

It will mean several days of testing at ACH and then once the results are in we will make a plan for treatment. We will begin these tests the first week of December. The doctor recommended that Amy gain a little weight and we requested a few weeks of normalcy.

Over the next two weeks we will be doing the things that Amy likes to do. We are going to bring her to visit friends that live in Mississippi and then going to Louisiana to visit family over the Thanksgiving holiday. It will be so nice to have a little time to balance out the craziness of the past few weeks.
Thank you to everyone who is praying and supporting us through this time. We know that our God has a plan for us and for our Amy. He is BIGGER than cancer.